There’s a stereotype of a cantankerous, old man who no longer gives a shit. Ebenezer Scrooge. Statler and Waldorf, the two crankpot Muppets who criticize everything from the audience. Donald Trump? Not only does the seventy-eight-year-old not care but he is totally settled on who he is. He isn’t going to change.
I’m sixty and happy to say I’m not there yet. No shrugging. No humbugging. No all-caps Tweets at 3 a.m.
I’m neither cranky—even before my first coffee of the day—nor settled with who I am. I still have work to do. Or attempt, at least.
I remain a work in progress. I am relieved I still care. Some of my greatest still-pending self-improvement pertains to my body and my mindset regarding it.
My dang eating disorder is an unwanted guest that arrived forty-three years ago and has never left. Sure, there’ve been times when it’s hung out in the attic or basement or even the condo storage locker, out of sight, mostly out of mind, but my messed up thinking and body dysmorphia have always been with me…even when my weight appeared healthy…occasionally several pounds “beyond” healthy.
More often than being an attic dweller, the eating disorder has been in the same room with me, wherever I go, right by my side. It hangs around, defiant.
Just try to ignore me. You can’t take two steps without bumping into me.
The eating disorder harps.
You sure you want to eat that? Seriously…ALL that?
It’s bound to put a pound on you. How you gonna
work that off?
Why haven’t you exercised yet? It’s not your day off,
you know. You only get one a week…even if you’ve
got a fractured rib.
You think you’ve only gained half a pound? It’s a
slippery slope, you know. You can’t take chances.
Many of the eating disorder programs in which I’ve taken part refer to the eating disorder as one’s guilty conscience, an inner voice or, often, a separate character: ED. He befriends and acts like he’s got your best interests in mind. Ed’s a supporter. Rah rah, be your best self.
And, clearly, that self has half a pound to lose. So unacceptable!
It would be easier—maybe even better—if I continued to keep my eating disorder a secret. But I’m very open about the fact ED hangs around. I lived alone with my eating disorder for thirty-six years. It was undiagnosed. When I’d finally summoned the courage to consult my family doctor thirteen years into the disorder, he shook off the possibility. “You’re just very fit,” he said. A good thing in general. A bad thing though for someone feeling messed up, for a person constantly exhausted from working so hard to eat so little and to exercise so much.
The diagnosis came twenty-three years after that consultation. At first, it was only known to me and the person who had done the assessment. Then, it was public info for anyone else in my first eating disorder group. It was confirmed again by a psychiatrist who did another assessment. I’ve been assessed and reassessed several times, formalities to continue receiving services. The result is never in question.
My family knows I have an eating disorder. My close friends know. My partner knows. Strangers know as well. I’ve been contacted by a few people after CBC published an essay I wrote about my eating disorder and after I participated in a CBC podcast. A researcher from a major Canadian university reached out to me via Instagram to invite me to be a patient-contributor in creating a new eating disorder assessment tool. I’ve also been the living-and-breathing patient participant alongside a professor and a social worker on a panel to enlighten nursing majors at another Canadian university.
Being public has a few benefits. It’s a load off me. I’m still a work in progress but the burden feels lighter knowing I’m not fully in hiding. My food restriction still happens in private, but I have the sense I’m no longer fooling anyone. I also hope that my openness may help others—friends and family of someone who may have and eating disorder or, even better, a person who is going through the struggle, diagnosed or not. I continue to believe that the earlier people get support, the better the chances they will see some progress in their own recovery.
Practically speaking, being public about my eating disorder helps me continue to qualify for services and supports. I was re-diagnosed and referred for programming last April as my eating disorder habits spiked. (Another assessment came in August.) My behaviors have evened out on their own since last April—still well within the zone of a diagnosable condition but less alarming. I’m currently accessing outpatient support though I went through a lengthy intake session last week for the possibility of being re-hospitalized and/or being readmitted to a group home for persons with eating disorders. I’m on the fence about these more intensive programs. They didn’t change me at all when I went through both in 2019. I wonder if I might be more receptive this time. What has changed for that to be a possibility?
Yes, I am a work in progress. Sometimes, however, progress is especially hard to quantify.
No comments:
Post a Comment