Twenty-nine
years
ago, long before
I
ever
knew
I had struggles with mental
health,
I spent
my first summer
of law school doing an internship
at Mental
Health
Advocacy in downtown Los Angeles.
At the
time,
one
of
the
great
mysteries
was why so many clients
went
off their
meds
which caused
them
to unravel.
Their
explanation
seemed
too simple:
“I
don’t want to be
controlled
by medication.”
Their
resistance
was maddening.
Now
here
I
am, a client
of one
mental
health
organization or another.
I’ve
been
off my meds
for three
weeks
and I’m falling apart. The
distress
this weekend
was excruciating.
While
I
wasn’t suicidal, I couldn’t figure
out
why I was alive.
I
couldn’t fathom living another
day. I couldn’t see
continuing
into July. Existing
was painful. I’d just returned
from a trip to Whistler which followed
a trip to the
Grand
Canyon and I was desperate
to
find another
place
to
flee.
I
struggled to even
breathe
in
my tiny condo. I hiked,
I ran, I cycled,
I cycled
some
more—a
gerbil
on a wheel.
This
morning I’m still frantic. I can’t figure
out
what to do with my day, much less
my life.
I
fled
my condo for a cafe
after
feeling
like
I
was burning up even
though a check
of the
temperature
showed
no cause
for
overheating.
I can’t be
by
myself
right now.
I’ve
been
unsettled
ever
since
I
got out of the
hospital.
Prior to admission, I had a steady
routine.
I
filled
my days. Six
weeks
of interrupting
eating
disorder
behaviors
interrupted
everything
else
as
well.
Suddenly
I can’t read
or write.
I
can’t find purpose.
I
can’t stand to be
in
Vancouver
but continuing to travel
is unsustainable.
When
I met
with a friend
on Saturday, he
asked
me
to
promise to take
my
medication.
I couldn’t even
offer
an insincere yes.
Like
those
clients
from three
decades
ago, I am trying to ride
this
out. My
last psychiatrist (who just retired)
told me
I’d
probably have
to
be
on
medication
for the
rest
of my life.
He
and
several
other
professionals have
compared
my mental
struggles
to a physical affliction. “If you had to take
meds
for diabetes,
you would, wouldn’t you?” Hell,
I don’t know. Maybe.
Probably.
I
don’t even
like
to
take
vitamins.
Or Tylenol.
I
feel
I’ve
gotten
so close
to
being
officially medication-free.
Two
years
ago, I was taking three
drugs,
a cocktail that I often
resisted
but admittedly
worked
in making me
feel
stable,
pretty
much well.
A year
ago, I went
off all of them
and eventually
crashed,
almost ending
up in the
hospital
again. As a bargain with my psychiatrist, I agreed
to go back on two out of three
of
them.
I was okay again. Then
six months ago things seemed
to radically change.
My
affect
was flat. No joy, no sadness.
I existed
in a tunnel.
Technically
safe,
but
wholly unsatisfying. I couldn’t emote.
When
I went
out with friends,
I couldn’t respond
genuinely.
I was just keeping
a seat
warm. I wasn’t myself.
I felt
like
time
was
just passing. It was agonizing.
I
missed
laughter.
I missed
smiling. I even
missed
crying.
While
I
was in the
hospital
in April and May, all the
people
working
with me
noted
my flatness.
The
hospital
psychiatrist took me
off
one
of
the
meds,
which brought me
down
to a single
medication.
Being
discharged
felt
like
regaining
freedom
and control. I immediately went
off the
remaining
medication.
I anticipated
having to ride
out
a few
lows. I even
welcomed
the
prospect
of being
depressed.
It was better
than feeling
nothing. And, surely,
if I could feel
lows, I could experience
highs too. I could laugh again.
So
far it’s just depression,
laced
with strong bouts of anxiety.
Intense
frustration,
crying fits. No laughter.
Tomorrow
I may go back on my medication.
Or maybe
the
next
day. Or next
week.
It’s illogical, but I continue
to
resist...and
suffer.
2 comments:
RG, Just read this post–-almost a cry for help.
I can't say anything you haven't already heard, but I know how you feel. I've always been an anxious person, but, over the past four or so years, it's gotten a lot worse. I've seen several counselors. I've tried various meds. Late last year, I attended what are called Rapid Access sessions for people suffering from anxiety. These sessions get you in a group setting with other anxiety-sufferers right away, until you're accepted for group counseling. I was accepted for group counseling early this year and attended nine sessions where we tackled anxiety using Cognitive Behavioral Techniques. The people there knew I struggled with taking meds to help me settle down at night, so I could sleep (that's when my worst anxiety hits––after I've gone to bed, turning some nights upside down). What they said makes perfect sense: As long as I resist taking meds, make more of them than I should, I will continue to need them. When the meds just are, with no judgement from me around taking or not taking them, then I probably won't need to take them anymore. Not going to lie, I'm not there yet. But I'm working on it. Some days are better than others, but I'm really focusing on not being critical of myself because I'm taking meds to help me cope. I have to do what I have to do, and, in the meantime, I look forward to the day when the meds mean nothing to me, and I no longer need them to cope.
I'm not saying you're in the same situation as me. In fact, I know you're not. But what I am saying is, take your meds, and stop judging yourself for taking them. Aren't you already too critical of yourself in so many ways? Take the pressure off. It's not worth it.
Hope this helps in some small way. I'm thinking of you.
Thanks for sharing your own experiences regarding anxiety, Rick. I very much appreciated reading your thoughts. I have tried CBT and, while I initially wasn't open-minded enough to consider it, I've warmed to it over time. I do need much more practice with it. I've been honest with my psychiatrist about going off my meds and we continue to have discussions about it. I wish more than anything that I didn't need meds as a support but it's looking more and more like being med-free isn't realistic for the time being.
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